Patients

From scientist to patient: Jola's journey with rheumatoid arthritis

Jola’s story is a testament to the resilience and dedication of scientists who are also patients, working tirelessly to advance medical science for the benefit of all.

September 19, 2024     

Jola Kosek had always been a morning person. It was her time to be alone and ease into the day. As an avid runner who had completed two marathons, Jola would sometimes start the day with a morning run. Six years ago, Jola was diagnosed with rheumatoid arthritis (RA). Now her days begin very differently.

“For me, the most difficult part [about RA] is that it kind of took away my mornings,” Jola said. “You wake up because your body is in pain, not because it’s time. Everything hurts. Every single joint in my body is stiff and painful, making me feel like I’m older than I am.”

Stiffness is a classic symptom of RA, often occurring when patients first wake up. This can last for 30 minutes or longer and improve as those with RA move and warm up their joints.

“It’s a struggle every single morning,” Jola said. “Like a small engine, I must warm up and take my time. And then I can start my life.”

Jola’s RA diagnosis came as a surprise, but she remains optimistic about the innovative medicines that BMS is developing.

A personal diagnosis

Jola, who worked at Celgene for nine years prior to the BMS acquisition, started in the Hematology and Oncology division. Now she is a senior scientist in BMS’ Immunology and Cardiovascular Thematic Research Center (ICV) — Translational Early Development.

“Our team was conducting research on various immunological disorders such as psoriasis and rheumatoid arthritis,” Jola recalled. Her current role involves developing biomarkers for Phase 1 clinical trials, requiring her to stay updated on new mechanisms, pathways, and diseases.

Despite her extensive work in RA, Jola was surprised by her own diagnosis. She had been sick as a teenager and diagnosed with juvenile arthritis. Although it was thought she may have RA, her blood tests were inconclusive, so she could not be officially diagnosed. She didn’t receive the RA diagnosis until about six years ago, when her pain and discomfort started to significantly impact her daily life. “I didn't connect that this (RA) is what I’m working on, and now I’m being diagnosed with it,” she said. “But it gave me more of a purpose. Everything I do, I feel like I’m doing for myself and for patients who will eventually benefit.”

Diagnosing RA is challenging because it requires a thorough evaluation by a rheumatologist, who must piece together clinical history, physical exams and test results. Early symptoms, such as joint pain, stiffness and fatigue, are common to many other conditions, making it hard to pinpoint this autoimmune disease specifically. Additionally, RA symptoms can develop slowly and vary greatly among individuals, further complicating diagnosis.


Balancing work and health

Jola’s RA has impacted her ability to perform tasks requiring fine motor skills, such as using pipettes in the lab. Despite these challenges, she remains committed to her work and is exploring other career options within BMS.

“My supervisors have been very supportive as I navigate this,” she said. “I'm looking into development opportunities throughout BMS to potentially transition to other roles while continuing my current work in the lab.”

Living with RA, Jola has had to adapt her activities and work schedule. “I know I won’t be able to work in the lab forever, so I just completed my MBA,” she said.
 

Jola says gardening, a lifelong passion, brings her joy and teaches her resilience.

Outside of the lab, Jola enjoys beekeeping as a hobby. “These activities contribute to my overall wellbeing and help me cope with my condition,” she shared. She’s celebrating her fifth season of harvesting honey.

A scientist and a mother

Not only does Jola bring a personal connection to her work as an RA patient. She is also deeply motivated by her personal connection to her work on inflammatory bowel disease (IBD), particularly Crohn’s disease, which her son was diagnosed with a few years ago.

“My kids are the front and focus of my life,” she said, emphasizing that her son’s condition drives her to work even harder. Jola is currently involved in projects aimed at finding a cure for Crohn’s disease and ulcerative colitis. She recognizes the importance of developing new medications quickly, as current treatments could eventually stop working for her son.

Her dedication to her job is driven by her hope that developments in diagnoses and therapies would improve the quality of life for her son and others like him.

“Time is of the essence for everyone,” she said, highlighting the critical need for faster and more effective medical solutions.

“My experience as a patient and a mother has given me a unique perspective on autoimmune diseases and patient care,” she said. “It has made me more empathetic and driven in my work.” 

A message of hope for all patients

As BMS celebrates Global Patient Week Sept. 23-27, Jola has an inspiring message for patients around the world.

 “Stay hopeful and resilient,” she said. “Science is progressing, and there is always hope for better treatments and a better quality of life.”


Learn more about rheumatoid arthritis

Rheumatoid arthritis (RA) is a chronic inflammatory disorder characterized by pain, swelling and stiffness in the joints. The condition has the potential to harm multiple body systems, such as the skin, eyes, lungs, heart, and blood vessels, in certain individuals. RA occurs when the immune system mistakenly targets and attacks the body's own tissues. 


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